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A doctor misdiagnosed Jenna's condition, wasting months on an ineffective treatment. Then Children's Hospital of Los Angeles doctors diagnosed infantile spasms, which often cause autism and mental disabilities. Jance to speak in MonroeMovie Scene for Shoes Adidas Superstar
. Meanwhile, patients and their families are seeking help and money by telling their stories on social media. One of the best known fundraising efforts was last year's Ice Bucket Challenge, in which people around the world doused themselves with ice water, raising $115 million for the ALS Association. Glenn and Cara O'Neill started the Cure Sanfilippo Foundation to save daughter Eliza, now 5. The disease kills brain cells, causing hyperactivity and autistic like behavior, then seizures. Patients eventually lose the ability to walk, Adidas Superstar Floral Watercolor
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speak and eat and usually die by their teens. The Columbia, South Carolina, couple tried charity events to fund research, but amassed only $250,000 in five months.
our childhoods, the ones lurking under the beds, in the closets or outside the windows on moonlit nights, the monster haunting Deborah Romero is real. She had rounds of chemotherapy followed by radiation therapy to get rid of it.
They knew they needed millions. Now the O'Neills are working with a children's hospital and a biotech firm to test a potential gene Womens Adidas Superstar 80s Rose Gold Metal Toe therapy, though manufacturing difficulties have delayed patient testing. The parents hope the therapy shows enough promise to attract a well off drugmaker that can fund larger studies needed for approval. "If it works in humans as well as it does in mice, it'll be incredible," O'Neill said. "It's Eliza's only chance, but we are nearly out of time. "Laurie Eallonardo of Torrance, California, faced similar fears when one of her twins, Jenna, started having hundreds of seizures daily at five months and stopped laughing, smiling and interacting with her.